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BCNA News 24 Aug 2017

New resources for people with a disability and their carers

Australians with a disability who have been diagnosed with breast cancer and their carers will now be able to access information resources to help them live well after their diagnosis.

BCNA has developed two new fact sheets Keep breast cancer away and Life after breast cancer which are available in Easy English written form, audio, and HTML for screen readers. A new video, Living with a disability and breast cancer, has also been released which has people sharing their stories of dealing with breast cancer treatment while living with a disability.

Resources for carers of people with a disability who have breast cancer – the video Caring for someone with a disability: the impact of breast cancer and the fact sheets Understanding breast cancer: information for carers of a person with a disability and You’re important too: looking after yourself as a carer – are also available on BCNA’s new Facing breast cancer with a disability webpage.

These resources are in addition to existing resources Sleepless nights, Feeling sad or worried, Lymphoedema, and Bone health and breast cancer, which are all available on BCNA’s Accessible resources page in Easy English, audio and HTML formats.

The resources have been developed after research undertaken by BCNA found that existing breast cancer resources were not in appropriate adaptive formats and did not provide adequate information on the interaction between disability and breast cancer, or adequately prepare people for the process and impact of treatment.

BCNA Director of Programs and Services Felicity Munt said these resources are an example of BCNA’s vision to provide a better breast cancer journey for all Australians.

‘It is crucial for any person diagnosed with breast cancer to have access to relevant and up-to-date information in order to make informed decisions about their treatment and care. In the past, people with disabilities and their carers have struggled to find accessible information about how breast cancer treatment and its side effects could affect them. We hope these new resources will make what can be a scary and stressful time a little easier to handle,’ Felicity said.

BCNA acknowledges the Victorian Government's Department of Health and Human Services for the funding of the following fact sheets: 

  • Keep breast cancer away
  • Understanding breast cancer: information for carers of a person with a disability
  • You’re important too: looking after yourself as a carer 
  • Life after breast cancer 

as well as the videos: 

  • Living well with breast cancer and a disability
  • Caring for someone with a disability: the impact of breast cancer 

The Easy English, audio and HTML versions of BCNA’s Sleepless nights, Feeling sad or worried, Lymphoedema and Bone health and breast cancer fact sheets were funded by Cancer Australia and released in July 2017.